46% of NET patients are
diagnosed at an advanced stage
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Webinar Recording Published: Updates on International Guidelines for Management of Pheo Para Patients
Pheo Para Alliance organized in March 2024 an educational webinar with Dr. Karel Pacak and Dr. David Taieb featuring the recent International Guidelines on Management of Carriers & Pheo Para Patients. The webinar covers updates on guidelines for SDHB/SDHD genetic...
AMEND Presents at SICEM 2024 in South Korea
AMEND CEO, Jo Grey, was honoured to be invited to give a presentation at the 2024 Seoul International Congress of Endocrinology & Metabolism (SICEM) meeting in April, organised by the Korean Endocrine Society. The special symposium, Multiple endocrine neoplasia:...
NeuroEndocrine Cancer Australia Calls For Improving the Lives of Patients With Von Hippel-Lindau (VHL) in Australia
During March and April 2024, NeuroEndocrine Cancer Australia (NECA) supported Von Hippel-Lindau (VHL) patients garner as many signatures as possible for a Government Petition to list Welrig/Belzutifan to be part of the Public Benefit Scheme (PBS). Belzutifan approval...